I don't write about DS2's seizure disorder very often but it is time for an update! Yesterday we went for his check up with his Neurologist at MUSC and he had a great visit. I have to say that I love our Neurologist and the staff at MUSC. I know it is a God thing that we ended up with Dr. Turner. His level of care, concern and understanding is beyond anything I could have hoped for. He deals with DS2 so wonderfully and doesn't forget that this Epilepsy Journey is one the whole family takes. I am grateful that he proposed and has directed us in using the Modified Atkins Diet as a treatment for DS2's seizures. He and the entire staff at MUSC seem to understand how scary this journey is daily and are extremely patient with me and my Mama Drama (which is more valuable than you can imagine!)
As far as DS2, he is 47 weeks seizure free (yep....I count each and every week!) and growing like a weed. He has been on the Modified Atkins Diet (a less restrictive version of the Ketogenic Diet) since February and so far we have seizure control!!! His blood work has been fantastic and shows no ill effects of the diet on his other systems. He does amazingly well on the diet, much better than I think most adults would do! Of course, the holidays are presenting some challenges as all the traditional sweets are more available and tempting but so far, so good. I am proud of my little guy and his ability to cope with the changes in his life.
It has been almost a year since our world changed and we began this journey, but I know God has blessed us beyond measure with each moment!